My Sister knows about her condition and she has made me power of atturney before she gets bad. She can change her mind anytime but she has got to be of right mind. She has good days and bad days. I rung her on May 1st and I asked her what day it was and what happened and she said Mum died (she died 1st May 1970) Then another time she asked for her dinner to saved as Dad was coming in for his dinner and she was saving it for him (he died in 1976)
As you say its very hard. We do laugh about things and are very open with each other. She had a mastectomy with breast cancer and her nickname is Chinese lady Wun hung lo. We are always talking about it and she does know she has Dementia. Its just a shock when in the 7 months she has been in the Nursing Home she can't walk, is asleep all the time and the worst thing is, she huddles in a feotal position in her chair. This is from a woman who walked everywhere and used her bike.