My long journey

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battychick_kike
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My long journey

Post by battychick_kike »

Hiya, This may take me a couple of weeks and I really hope I don't send anyone to sleep, but I wanted to tell you my story.

It all began back in 1992, I was getting abdominal cramping and stabbing pains. Thought nothing much of it and put it down to my cycle.

By 1993 the pains were becoming more and more frequent and painful to the point I would be a crying heap on the floor.

Went to my GP and she said it was irritable bowel syndrome and suggested I drink Fybogel and wrote me out a prescription for it. I went to chemist straight away in high spirits and the lady on the counter said to just buy it "over the counter" as its a lot cheaper than paying the prescription charge! So I did that and went home.
Made up a glass of this gooey stuff and drank it! It was awful! Sort of Orange in flavour........but eeww gooeey and bitty! I thought to myself that I need it to stop these pains so I took a deep breath and drank the rest quickly! sile}
I made up one of these drinks everyday and after a few months......no......I hadn't got used to it! The pains were still happening and with equal ferocity as before so off I toddled back to my GP. Again, she just said its IBS and perhaps I should just learn to live with it as there isn't anything that can be done for it! )gr:
With that I binned the remaining packet of Fybogel )t'

Meanwhile I was still suffering these pains. I was at work one mid morning and I collapsed on the shop floor in agony! My friend Lisa rang my dad who came to get me and he took me to the local A&E. Together we hobbled in to the department and I sat down in the waiting area while dad went and registered me. Almost 4 hours later I was seen, but! In typical fashion, my pains had passed, the doctor examined me anyway and then he sent me away saying there was nothing wrong! So frustrating! )dwn:

Still the pains continued, I carried on as normally as possible and even began to learn how not to react when the pains came so that people around me were not aware of it.
I kept going back to my GP and asking her to explore the problem as I didnt think it was IBS anymore but she refused and simply said that a lot of people live normal lives with IBS and that I shouldn't let it control me! :!:

By 1995 I gave my GP another chance, I had been researching my symptoms and came up with only one possible diagnosis and for this to be confirmed I would need to be referred to a specialist. She flatly refused my request and said that self diagnosis was a very bad thing and will cause unnecessary worry and make my "IBS" worse! Well, I was livid! had spent the best part of 3 years in unbearable pain! She is supposed to care but she wouldn't help me! )de:

When I left her room I went straight to the reception and made another appointment but with a different GP (GP2) in the surgery. The soonest appointment available was two weeks time so I took it.
It was a very long two weeks but before I knew it I was sat in the GP2's room telling her all about my symptoms and what I think it may be. She listened to every word I said without interrupting me :)
She didnt say anything when I finished and she wrote out some notes.
Next she said, "I will be referring you to gynaecology for an investigative appointment, you should get a letter from the hospital in a few weeks"


I was elated )c( finally, someone was taking me seriously!


TO BE CONTINUED......

Taz

xxxx
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manda
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Re: My long journey

Post by manda »

Oh grief..that is awful...I'm on the edge of my seat now wanting the next installment.
Agree with you Fybogel is gross!!!...probably useful for wallpaper paste though :?
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stace
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Re: My long journey

Post by stace »

Hope all gets sorted out soon for you its so frustrating trying to get some answers


stace
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Mrs Fuzzywig
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Re: My long journey

Post by Mrs Fuzzywig »

Taz, I was tut, tut, tutting whilst reading your post along with "for goodness sake" and a few "bloody h*lls". I bet your useless GP wouldn't have put up with that pain for 3 years, I could tell you of several stories of my own but don't want to bore you. The NHS is definatly going down hill but I truely hope you get some positive help at the hospital and by the way, self diagnosis is not a bad thing, most of the time it's the only way of getting the treatment you need. Please let us know how you get on, fingers crossed.

Carol-Ann
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wendy
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Re: My long journey

Post by wendy »

Hi Taz.
Not the first time I have heard a story like this.
Hopefully you are on the road to sorting it out and no longer will be in pain.
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Babycakes
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Re: My long journey

Post by Babycakes »

What was it Taz?? Because EXACTLY the same thing happened to me when I was 14, I got the same diagnosis, the same treatment (minging stuff, that fybogel) plus ibuprofen tablets that would have knocked out a horse.
I got a proper diagnosis in 2001, 7 years later - turned out to be PCOS.
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madmum
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Re: My long journey

Post by madmum »

I do hope it all gets sorted very quickly (f+ ,what about a complaint about the other GP just to let her know she is capable of making mistakes and not to be so complacent(might stop somone else having to go through what you have had to) )t'
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kate egg
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Re: My long journey

Post by kate egg »

I had very similar pains for a few years, luckily I eventually went to see my wonderful GP and within 3 months was booked in and had an op 2 years ago = no more pain )t'

Hope your story has a similar ending :-D
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battychick_kike
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Re: My long journey

Post by battychick_kike »

2nd instalment

By late 1995 I got a letter from the hospital for an appointment with a consultant there. The appointment was not for a few weeks time but that didnt matter to me, finally something was being done. )c(
The wait was long, the pains still came and went but I didnt worry as I knew it will be sorted and I would have an answer.
At long last my appointment day came and I was sat in the waiting room of the hospital. In typical Doctor fashion, he was running over time!
Next thing, my name was called and I followed a nurse into a room just down the corridor.
I met my consultant, he seemed quite nice but sort of stern like! :!:

I told him my symptoms and what GP1 had said I had, and that I had done a little research and came up with a few possible diagnosis, I also said that I thought it was one in particular and that GP1 dismissed them all! He was reading through what I assumed were my medical notes and then he told me I would have to have an operation called a laparoscopy! :shock:

It sounded ok.

The instrument is a laparoscope that has a light and a camera at the tip, The surgeon uses it to see inside the abdomen without performing a more invasive open surgery. Its commonly known as keyhole. Its also more preferred as the patient can usually go home the very same day of the operation.
The operation requires 2 - 3 small cuts in the abdomen, first just below the tummy button, a hollow needle is inserted through there and then a supply of gas is passed through the needle to inflate the abdomen and aide the surgeon to see clearly and work without causing damage to organs.
Then the laparoscope is inserted through another cut (not a specific location) If any other procedure is to take place, i.e samples, lasering, then other cuts will be made and instrument for the purpose are inserted.
Once done, the gas is allowed to escape and the cuts are sewn together using dissolvable stitches.

All sounded fine to me, but then, I didnt care how they performed the procedure, my main concern was stopping this pain!

Next stage, was waiting for the date for the operation! Well, letter arrived in the post a few weeks later and I had a date for my op..............I think it was for March 1996........a few months away! Well, I was ok with it as at least I was going to get sorted! )c(
It was not long before I had my pre op appointment. Everything was hunkydory and I was all set for the operation the following week. )c(

I arrived at the hospital nice and early 08.30am and registered myself with the reception. I sat and waited with all the other patients in the waiting room. By 9am a nurse came in and called a selection of names, mine was not called that time so I sat there and read a magazine which was months out of date! :?
About 10 minutes later another nurse came out and started to call out several names and mine was one so I got up and followed the nurse and the other people in to the ward. I was shown to my bed and told to just stay there and I will be given instructions in a while.

Well, it was about an hour when the nurse came over and she filled out her sheet and told me to change into the hospital gown, she said I would be going down to theatre about 2pm and that the operation should only take 30 minutes.
I was absolutely starving hungry! but was not allowed to eat or drink anything! It seemed like an eternity and I tried to nap away most of it! ~eep~

One by one the other patients were being wheeled to theatre and returning all pretty much asleep, only one or two were fully awake.

Next it was my turn! :shock: To say I was nervous was an understatement! I have a huge phobia of needles and am a complete woos when it comes to pain!
I knew this operation needed to be done and I wanted it so badly but I was still scared! Too late to turn back now though, I was already in the anaesthetic room with the anaesthetist, he was a nice chirpy chappy and he did make me feel a little more relaxed......he obviously could read my face! :oops:

Time for the big needle!!!!!!! yike* I had a special needle thing attatched to the back of my hand and the anaesthetist began to administer the anaesthetic. Well, I felt it all cold going up my arm, then it felt like someone had wholloped me across the forehead with a baseball bat and I had the sensation of falling backwards............................................

TO BE CONTINUED........

Taz

xxxx
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silky
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Re: My long journey

Post by silky »

As an ex nurse, I’m enjoying your saga, but waiting five days between episodes is like waiting for next Saturday when I was a child, before I could see Roy Rogers or Tom Mix at the local cinema.
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Mrs Fuzzywig
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Re: My long journey

Post by Mrs Fuzzywig »

LOL, I'm also an ex nurse, Silky. Come on Taz, don't keep us in suspense, what did they find?
Carol

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kdoc
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Re: My long journey

Post by kdoc »

Am I jumping the gun but i am hoping the end result is going to end in congrats :!:

Karen
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Re: My long journey

Post by kdoc »

Ps remembering conversation we had awhile back but if it isn't still have fingers crossed

Karen
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chick-chick
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Re: My long journey

Post by chick-chick »

I'm on the edge of my seat, I hope all is okay..
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Sunny B
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Re: My long journey

Post by Sunny B »

What happened???? :shock:
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